Saturday, February 6, 2010

Waxing and waning...

Right now, this minute, Bronson is moving his right arm... again.
The one he only twitched just a little bit yesterday.
The one they said might be partially paralyzed due to neurological damage.
The one that was unresponsive during the Neuro-Assessment just earlier this morning.
They say these types of brain injuries can evolve.
That there will be "waxing and waning".
.
.
...Glad to be back to the waxing!
.
So as I gave him a little sponge bath and styled his funky little faux hawk,
he batted my hand away. Cognitively. Several times.
Just like he does at home when he's bugged with my ceaseless primping and polishing.
.
I ran out and grabbed the Nurse Practitioner, Kristen.
Dr. Bennett ran in as well.
It was smiles all around the room.
I hate to say I told you so...
But ...then maybe I don't! ;)

Friday, February 5, 2010

Chasing out fear, choosing faith...

The MRI was encouraging.
{Insert HUGE sigh of relief...}
No visible sign of damage to the brain.
That does not insure that the functionality of all his faculties is intact,
but at least it is not a negative.
At least it is not more BAD news.
Today has been our scariest yet.
And also our most sacred.
What a juxtaposition of emotion...
.
I went to bed at about 4:30 Friday morning.
Baby B was resting quietly.
I kissed him goodnight and said a prayer with him at his bedside.
He opened his eyes and our hearts connected.
Spirit to spirit.
For just a brief moment
Good Night, my sweet boy, I said.
.
I went to my sleep cell a few hallways away.
Thank you, Savannah, for the electric blanket.
I was warm and slept soundly until about 8:15.
I woke and packed up my bag, pulling it back down the hallway,
greeting the familiar faces along the trek.
Another day here at the PICU.
.
As I walked into B's room and met the new Day Nurse, Rowdy,
I was immediately alarmed.
In the bed where I'd left my little boy to heal and rest
lay a glassy-eyed guy with a blank, empty stare.
My stomach dropped...
"So how are we this morning?", I asked cautiously.
Rowdy filled me in on the morning's Neuro Exam.
He'd come on shift to meet Bronson for the first time and had been advised of his exciting progress.
But he'd found him a little sluggish.
Wide awake, but not really alert.
Staring blankly without focusing. Looking right through everyone.
Unresponsive to stimuli.
What had changed in those 3 hours and 45 minutes?
.
The Nurse Practitioner was called.
Then the Attending Physician.
Then the Neuro-Trauma Specialist.
We went over and over his chart, again and again.
We asked about all his medications.
What had changed? What had increased? What was new since yesterday?
We hypothesized about the possible changes and his sudden decline.
No one had any answers.
Had we imagined the encouraging progress? Embellished it? Misunderstood it?
No, I had seen my boy.
We had seen our boy. We were sure of it.
Others were sure of it.
We even had him on video from the day before.
Dr. Bennett explained that a neuro-trauma injury can evolve and often plateau.
Was this our plateau?
Was this the boy we would be left with?
We felt defeated.
Like someone had just let the air out of our balloon.
.
.
We may have to wait for an MRI until Monday.
How could we wait until Monday?
No, they could squeeze us in.
We waited the long, drugerous hours until 3:00 pm.
.
Our Stake President stopped in to see how we were doing.
He found us worried. Well, terrified. Faltering in our faith. Sick.
Matt gathered himself and they offered Bronson a Priesthood Blessing.
Matt... Oh, my Matt...
He turned his little body and mind back over to the God who had helped us to create him.
Asking for the faith to discover Heavenly Father's will and the strength to follow it.
To align ours with His.
President Francom counseled and advised. Hugged and encouraged.
What a blessed servant of the Lord.
He left us and I plead for your prayers.
They took Bronson down for the MRI.
Matt and I held each other in that empty little hospital room and fell apart in each others' arms. Sobbing and clinging to one another, praying.
Pleading for our son with every ounce of strength we could muster.
Sealing our hearts together.
Like never before.
I can not share the words we spoke with one another.
They are the most precious we have ever shared together.
But as I spoke, I realized that faith can not grow where fear is allowed to dwell.
There is not room in my heart for both.
Fear is the paralyzing agent of the adversary.
A first line of his defense.
And so I made a choice.
I must choose faith. Choose to believe. Despite the odds.
Despite the grim news. Despite the reality before us.
No matter how vulnerable and unguarded I let myself become, I will not, I can not fear.
I swallowed hard. Past the unbearable burn in my throat.
And chose to let go of the fear. Chasing it out with my faith.
Doctors do not know everything. They can only make their best guesses.
And even they admit to seeing miracles every day.
.
I know Heavenly Father lives.
I know He loves Bronson and has a plan for his life.
If it is God's will for him to remain with us, he will.
Simple as that.
And with the whole world praying, what have I to fear?
The Lord is bound to answer the prayers of the righteous when they are asked in faith.
And this is the righteous desire of our hearts...
We plea that He will spare our son. Heal his body. Protect his mind.
So that he may live out the rest of this mortal life as a testimony of God's miraculous power.
I can not consider the other option.
There is no other option.
.
But I am stronger than I thought I was.
I can do hard things.
Our family can do hard things.
We will accept the will of our loving Father in Heaven because it has never lead us astray.
Why would it now?
We will trust. We will be believing.
We will continue loving and being loved.
And we will press on faithfully, because we are faithful.
.
This I know...
Bronson's spirit is untouched. It lies within a broken body I do not know how to fix.
But he is ours. Forever. Come what may.
I am blessed to be his Mommy. Matt to be his Daddy.
.
The name Bronson means "Strong one".
The name Micheal means "One who is like God".
It is no coincidence that we chose these names for him.
What a powerful force he is...
Our strong, sweet, wonderful, beautiful boy.
By small and simple things, great things are brought to pass.
And great things have already come to pass.
People who do not pray, are praying.
People who do not believe, are finding hope.
People are reevaluating their faith and priorities.
I am reevaluating my faith and my priorities.
And THAT is the miracle.
He is uniting people across the globe.
Literally.
Teaching the power of prayer. Individually. And how collectively, it multiplies exponentially.
Allowing us an opportunity to practice our faith. And allow it to grow.
.
I do not know why our family was chosen to pass through this challenge.
But I do know that God is mindful of each and every one of us.
All of the time.
He reaches out with tender arms of mercy.
In tiny specific ways.
Extending his grace until we are filled. Until we are enough.
.
Our Angel Nurse, Sally, helped us to hold him tonight.
To cradle our arms around him, stroke his tender cheeks and watch him sleep.
We sang to him that he is a Child of God.
A bit of Heaven was in our little room
as I felt his warm, limp body pressed against my own.
Count your blessings if you can do that without tubes and wires and machines between you.
.
For anyone keeping score we are two tubes down today.
Bye bye to the peripheral IV line in his ankle.
Good riddance to the arterial line in his bloody little wrist.
We will not miss them.
But we reluctantly welcomed two more necessary peripheral IV lines.
One in his left ankle. The other in his right hand.
We still do not know what is causing the seemingly unexplainable decrease
in his neurological functions today, as opposed to yesterday and the day before...
I have a hunch, but I'm not a doctor.
I'm just the Mommy.
Thank heaven I get to be the Mommy!

More prayers needed...

I know we are not the only family dealing with heartache...
I pray you will not tire of our ceaseless requests for your faith and your prayers.
We are humbled to our very cores...
To the very fiber of our souls.
If there is anyone watching and waiting with us, this afternoon,
we plead, one more time, for your prayers.
Things are not going so well here today...
I have never been so afraid...
Even Matt, my rock, is wobbling a bit
for the first time.
His solid faith being chased out by the fear of the reality
we are dealing with hour to hour, and minute to minute.
The once confident doctors are worried...
We can see it in their kind eyes,
written in the creases of their weathered, experienced faces.
They do this every day.
I could never...
There seems to be no logical reason for his sudden decline.
They've sent him for an MRI.
He'll be gone an endless, torturous hour.
The results back a few after that.
We'll have a better idea this evening.
But for now, if you are able and willing,
please petition to heaven for our family.
Please ask our loving Father,
creator of Heaven and earth, and all things in them
to heal our broken boy.
I watched the beautiful snow fall this morning
and thought how many endless things he has created.
The majesty of the mountains I can see out my windows here.
The vastness of the oceans across the globe.
The tiny, delicate blossoms that will bloom again in Spring.
Certainly He can do all things.
Certainly He can mend this child's mind.
Please pray for Bronson.
Please don't be afraid.
Pray with faith and confidence
for God is bound to answer the prayers of the righteous.
We pray that Bronson will live, as a testimony of Heavenly Father's infinite, boundless power.
We pray He will say yes.
Please let Him say yes...
So I gave my self permission to be human.
.

.

Took a shower...
Shaved my legs...
Matt kindly told me at lunch three days ago that I still had vomit in my eyelashes.
(Leftover from the sputtering during CPR.)
I finally washed the last of it out.
I feel almost like a person again.
Although, not the same one.
Never the same one.

Alone tonight...

Our sweet 3 came to visit their littlest buddy
and {insert happy sigh...} it was nice to squeeze them.
Matt went home tonight.
Needed to be a Daddy.
Bless him.
.
He is so confident that all will be well.
He is so sure.
So faithful.
I am in awe of his strength.
.
I, on the other hand, am a trainwreck.
.

.
All over the place.
The nights are harder than the days.
That is when I find myself falling apart.
People keep saying I am doing so well. I am so strong. I am amazing.
Hog wash to all of you.
.
As evidence, let me share this little diddy for your reading enjoyment...
So the other night
(We'll call it Night 3 because the days and nights all blend together here
and well, to be honest, I'm not even sure exactly what day it is right now.)
I was up late. I was tired.
Scratch that... I was exhausted.
And emotionally drained.
(In hind sight, I realize that NOW.
But at the TIME, I had fooled myself into thinking I was handling things quite well.)
However, I was driven... focused.
It was the night I decided to start posting to our blog.
To spread the word.
To preserve a record.
To process through everything that was happening.
To keep my mind off things.
And well, let's be honest, if you know me, you know I always need a project.
So I cozied up in a corner recliner in B's Room with my Laptop.
And as I hacked my guts out onto the screen, I sobbed.
The poor Night Nurse (always in the Room in the PICU) kept asking if I was okay.
I was fine.
Couldn't he see I was fine?
Duh.
So I ran into some hiccups.
There was an issue when I added the the photos to my post and it messed up the formatting.
Then the autosave failed.
I could not get the text to copy and paste to a new post.
I had to drag and drop it one section at a time.
I was near-finished in the wee hours but nodded off at my Laptop.
Cody, the Night Nurse came to tell me it was 7 am.
Time for parents and visitors to leave the room for an hour during shift change and assessments.
I hate that hour. It is misery to leave his bedside.
I went and got a yogurt from where I'd stashed them in the Nutrition Center fridge.
Then choked down a banana.
I went potty and brushed my teeth.
I washed my face in the sink.
It was only 7:15.
I still had 45 minutes until I could return to Bronson's room.
I snuck in and snagged a blanket.
It is always cold here. I've been an ice cube since we arrived.
I wrapped myself up in a little cocoon and sunk down on the floor
to wait until I could be readmitted to the room.
But I was just so tired! So so so tired!
The next theing I knew, Ian, the Daytime Nurse was crouching above me.
Sleeping on the cold tile floor in the hallway outside Bronson's room.
Telling me I had to wake up.
Telling me to go to bed.
Telling me to look at him and asking could I hear him
as I lay silently, unresponsively staring at the floor.
I looked up into his eyes and the floodgate broke.
"Don't make me leave him! Please don't make me leave him!
That's why we're in this mess in the first place! I just can't ever leave him!"
I sobbed.
Bless his heart.
He literally scooped me up beneath the armpits,
from the puddle of a person I was on the floor,
wrapped me a little tighter in my blanket,
walked with,
well okay, practically carried me
down the hall to the parent sleeping cells,
found Matt
and tucked me into bed.
Yeah... like I said.
Trainwreck.
.
Thinking back now I shake my head at how pathetic it all must have seemed.
But now, with Matt gone, I feel so alone.
And as I watch that tiny boy sleeping,
I feel that familar tightness firing up in my throat
and have to swallow down the tears.
.
And then I remember that I am not alone at all.
There are hundreds of you awake with me, praying.
An army petitioning our loving Father.
Enough to get my little train back on the track and chugging up the hill...
For now.
Many thanks~
A hug to each of you.

Thursday, February 4, 2010

Three Steps Forward, Two Steps Back...

They told us this would be a roller coaster.
.

.
They told us it would be touch and go.
They told us it would be hard... and heart wrenching.
We knew there was a likely chance that he could back slide at some point.
.
But with all of you praying, from LITERALLY across the globe,
exponentially increasing our own faith and prayers,
we thought he would be the exception.
Our boy must be the most prayed for baby in the world today.
We are touched to the depths of our souls.
But we're just one of a hundred families with a child in the PICU.
One of dozens of tragic, heartbreaking stories.
We are no different than they are.
.
The morning was off to a good start.
I was cautiously optimistic.
I actually felt peaceful for the first time since the incident.
.
I knew it would be a good day.
.
They got an early start.
We peeled a couple quick layers off Our Little Onion...
.
His fluid level is finally in check and the overall edemitus swelling is down,
so they removed his catheter and bladder probe.
Hallelujah for the bag full of pee!
.
His core temperature seems to be stable,
so they took out the esophageal temperature probe.
.
SO for anyone keeping score, that's two minor tubes down, one major tube to go for the day.
.
He was extubated by a few minutes after 9.
We were so optimistic.
Wonderful Dr. Bennett, who is always cautious, seemed confident.
.
Bronson was alert. Completely off his paralytic and all sedatives.
The extraction was less traumatic than we expected.
We'd been warned it could be awful. Lots of gagging and wheezing.
Scary for parents to watch.
It went smoothly. Slid right out.
These guys here are pros.
How can they NOT be amazing with all of your prayers for them?
.
The first half hour was exciting.
We sat him up and helped to pat his back while he coughed.
Matt and I each held a soft arm restraint from opposite sides of the bed,
to keep his hands away from his face, more importantly his tubes.
.
They first tried a standard oxygen cannula, just the little nose hose with prongs up each nostril.
He was still huffing pretty hard.
We waited patiently, singing Primary songs to him and trying to calm him down.
.
His color began to drain...
Our hearts began to sink...
They knew he needed more supplementation.
.
They changed out the oxygen hose to a High Flow Nasal Cannula.
He was still wheezing.
Working so hard to pull in air.
Panic and worry in his eyes. Looking from Mommy to Daddy and back to the nurses.
Not understanding.
Getting more and more agitated as they suctioned the secretions out of his airways.
.
We tried helplessly to soothe him.
He arched his back and kicked his feet,
struggling to get away from the helpful, but let's be honest, bothersome abuse.
.
Another idea.
A supplemental breathing apparatus called a Bi-Pap.
They program in a certain lung pressure and the machine helps him to maintain it.
They use a face mask with a huge hose that makes him look like a jet plane pilot.
It allows him to breath on his own,
but then calculates the deficit in lung pressure with each breath
and tops off each one with an extra little puff through the mask.
A-Maz-ing. Modern medicine and machinery are miraculous.
But, sadly, little Bronson did not respond quite as we had hoped.
.
They gave him as much time as they dared and chance after chance,
but ultimately, they decided his vitals were too high and he was entering distress.
.
He had to be re-intubated a little after 11:30 this morning.
It was excruciating.
Soooooooo disappointing.
So scary to watch.
So amazing to witness.
I thank God for these physicians.
They have my utmost respect.
They work as a well-oiled machine, not a cog out of place.
I am amazed at the positive energy that each and every one here exudes.
They speak with such kindness, respect and appreciation to one another.
Even amid intense crisis.
They are the calm amid the storm.
I am going to try to emulate that for the rest of my life.
Another life-changing lesson learned.
.
So, I wish I could wrap up today with a nice tidy red bow...
But, frankly, today was discouraging, to say the least.
It felt like three steps forward and two steps back.
Still dancing with his destiny.
.
I went to lunch feeling heavy-hearted.
We were riding this incredible wave of momentum.
Swelling bigger and bigger as all of your prayers come rolling in.
We were beginning to crest the summit.
To feel the wave slowing and come crashing down, felt like such a set back.
.
And then my Matt...
My sweet, sweet Matt pulled a rabbit out of his hat
with his positive spin...
There is no set back.
We are still two tubes ahead of this morning.
And two tubes is two tubes.
Even with out the big one we were hoping for.
We are still moving forward. Onward and upward.
At Heavenly Father's pace. At Bronson's pace.
We just have to be patient enough to ride it out.
.
Yeah. That's my Matt.
My Rock.
I chose well.
I am the luckiest girl in the world.

Ready to extubate...

Another 4 am Spontaneous Breathing Test came and went perfectly
while Matt and I slept a few hallways away.
.
This morning the doctors feel confident that he is strong enough to handle extubation!
Wahoo!
.
Bronson can not WAIT to get that tube out!
Matt can not WAIT to get that tube out!
I can not WAIT to get that tube out!
It is the golden ticket that will land him back into my arms!
.
.
I can not WAIT to hold my sweet, beautiful, strong, amazing boy!.
.
They've just turned down the Precedex...
As soon as he wakes up...

Waking up...

This morning I woke with strong warm arms around me.
Strong warm arms that had wanted to go home and sleep in their own bed,
but stayed because I needed them.
.
It was a nice way to wake up.
For about two seconds.
Snuggled against my sweetheart.
And then I realized we were sharing a twin sized bed.
In a dark little sleeping cell.
Far away from home.
And the wave of remembrance washed over me like a wave.
Tangible. Heavy.
The familiar burn returned to my throat.
That lump came back.
.
Here we are.
This is where we live now.
.
I lay there letting it all soak in again.
Praying for another good day.
Thanking God again for all of the countless ways that this has been made easier.
The amazing things that are taking place.
The faith that is growing and chasing out the fear.
.
I sat up.
Wiped the tears from falling.
Took a breath.
Chose to be ready.
Bring it on!
Another chapter of our miracle.
It will be a good day. An amazing day.
.
I can feel it!

Awestruck...

It just gets better and better.
He's been wide awake and super alert for the past couple of hours.
The doctors and nurses here are thrilled with his progress.
I am ecstatic!
The Breathing Trial was perfect.
He went without the vent for over two hours and never needed it once.
They will do another trial in the morning
and if it goes well they plan to extubate sometime tomorrow.
.
Heavenly Father is pouring down blessings upon this little boy
and on all of those who are praying for him.
I am hearing amazing stories...
I have learned that faith heals... Not just the body and mind, but the soul.
Prayer seals hearts together.
Even people who have never met in this life.
Angels walk on earth as well as in heaven.
I see their goodness with fresh eyes.
.
Thank you all for your strength and testimony...
I am in awe of you!

Wednesday, February 3, 2010

Holding our breath...

We are about to start a Spontaneous Breathing Trial
to see if Bronson is ready to extibate fom the ventilator...
.
He is still intibated with a breathing tube,
but they are turning it off.
.
{Ahhhh! Scary!}
.
They will let him take over breathing on his own for an hour to see how strong his lungs are.
If he does well, they will take him off permanently in the morning.
.
We are holding our breath hoping he doesn't hold his!
.
.
Prayers needed!

Pin down...

We've had a pretty slow day here and a very sleepy little guy
aaaaaalllllll day long... not much action, really.
And then they took him off the Versed...
WOW!
We've got one strong little dude here!
It took Matt and I,
the Respiratory Therapist,
and TWO nurses to hold him down...
Another nurse to turn off all the alarms...
And still another to give him a bolus of sedative!
Let's just say he did NOT want to be suctioned.
It was a total wrestling match!
He put up a DARN good fight!
.
.
And am I sorry about that?
Not on your life!
YAY!

Our Little Onion...

One of our fabulous Nurse Practitioners, Erik,
told us yesterday that recovery from a Post-Arrest Neuro Trauma
is like peeling an onion.
..
When a child is so sick that they are on life support sustaining devices,
you just slowly wean them off of one thing at a time...
Wait...
See how they do...
Then when they are stable, you go onto the next layer and work from there.
We liked analogy that a lot.
.
It's fragile. It stinks. Sometimes it's surprisingly sweet.
But you really can't forsee what's inside until you get there.
And it's a slow, painful process...
.
We also decided it's fitting because there are so many tears.
Tears of sorrow.
Tears of worry.
Tears of anguish and regret.
Tears of hope.
Tears of faith.
Tears of comfort.
Tears of gratitude.
Tears of joy.
.
So Bronson has become our Little Onion.
.
.
We still have so many layers left to go...
{Sigh}
But we can only think of one at a time.
This one.
.
.
Today, we peeled another layer off our onion.
We finished the Hypothermia Therapy last night
and he has been able to retain a normal body temperature.
They removed the the device we disaffectionately call his "ice blanket"
and he is ever so grateful! He really did NOT like that thing.
But come on, would you?
.
Because he is less agitated, they were able to lower the dose of his sedative.
He still sleeps unconsciously almost all the time, but reacts a bit more to any stimulation.
.
His chest Xray this morning shows that his pneumonia is improving.
His right lung shows a small globule of collapse after all,
but does seem to be less dense and improving.
.
They continue with the lasix (furosemide) to relieve some of his adema,
as he is retaining water. He looks a little less puffy today, overall.
As he warms up, and the circulation to his extremities improves,
his poor little hands and feet are beginning to swell.
.
.
Thanks to those of you have sent him stuffed animals
(Jen, Jared & Lisette, Chris & Lisa, Mindy)...
We are using them to prop us his arms and reduce the swelling!
.
.
The petichiae on his arm looks a TON better, almost gone in fact.
.
He is running a little low-grade fever.
His sweet Daddy is diligent in adjusting the cool comfort cloths
we are using across his forehead and chest to draw out the heat.
.
They've been watching his hermatocrit drop for the last day and a half
and determined this morning that he did indeed need a Blood Transfusion.
Darn. But I guess it is the least of our worries.
It is running now.
.
We cleaned him up a bit.
I was able to give him a little sponge bath this morning.
I washed off the rest of the blood from the resusitation line attempts.
I wiped the drool and sticky stuff out from the rolls under his chin.
I scraped the crusty boogers out from around his vent hose and nose tubes.
Now that they have taken the EEG scalp electrodes off,
we were able to wash his hair and give him a cute little do!
.
.
His faux hawk is a huge hit with all the nurses and staff.
He's stylin' again now!

Tuesday, February 2, 2010

Awesome day...

Oh, Friends...
THE BEST NEWS YET!
We are all smiles and joy up here in Room #2314!
Our Neuro Assessment this afternoon was nothing short of miraculous!
I am sure it is due to your prayers of faith.
About three hours after they stopped giving him the paralytic,
they decided to lower his sedation to a half dosage.
It wasn't long before we saw OUR little Bronson emerge from the quiet, lifeless boy
that has been lying in his hospital bed since Saturday.
He came to and made eye contact with both Matt and I. We are sure he recognized us!
He looked around trying to figure out where he was.
He made expressions we recognized.
He looked worried. Confused.
He scowled a little when he was bugged.
He got good and mad at our Nurse, Ian, when he didn't like the stimuli.
He gagged when they stuck the suction tube down his vent tube.
He coughed up some of that nasty mucus in his lungs.
He wriggled away when we squeezed his shoulder.
He pulled his foot away and curled his toes when we pinched the big toe on each of his feet.
He lightly squoze my thumb and reached out to grab it back when I pulled it away.
He cried when they brushed his teeth and cleaned around inside his cheeks and mouth.
He pushed against the vent tube with his tongue trying to get it out.
He raised his arms up by his ears and shook his head
while they scrubbed his head and combed his hair.
He took a few spontaneous breaths, stacked above the breaths the ventilator is making for him.
He put on a darn good show and we were all cheering like crazy!
...Prayers of gratitude tonight!
.
He was up and at 'em for a couple hours but is back under sedation now,
although they are permanently lowering the dosage in order to allow him to remain semi-conscious.
The hope is to keep him comfortable and allow him to rest and heal,
and prevent him from getting too agitated and grabbing at tubes.
.
We can't wait to see him again tomorrow!

Warming up...

They have finished the long 16 hour warming process
and Bronson is now at 36.4 degrees celsius,
and so far he is holding steady at regular body temperature.
They have taken off the top hypothermia blanket.
He is no longer getting a paralytic drip to keep his body medically paralyzed.
They have lowered the dose of sedative by half
to allow him to slowly wake up from his medically induced coma.
I am typing from his bedside and he is just now starting to flutter his eyes
and show reflexive movements, but nothing major yet.
Wait!
Just as I typed that Matt saw fidgeting fingers and a few toe curls!
That is the first of the minor motor skills we have witnessed so far!
We have been advised to wait to really stimulate him until he is more fully awake.
We want to reserve his energy until he is alert enough to show us what he can really do.
We don't want to wear out his muscles before he is conscious.
I am signing off to go hold his little hand and sing.
"Do As I'm Doing" is his favorite! Sing with us!
Let's see what this guy can show us!

Pneumonia update...

Chest Xray this morning shows the pneumonia in the right lung seems to be improving.
The new attending seems to think that the density looks more like fluid than actual lung collapse,
so they will continue intravenous antibiotics and hope it continues to improve.
Keep your fingers crossed!

Monday, February 1, 2010

It is painfully ironic that the last blog post I made was the day after Bronson's birth,
to joyfully announce his safe arrival into this life...
.
And the next one I allow myself to make, is the day after his near-death,
to update you on how he was almost taken from us...
.
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I have mixed feelings about starting to blog again right at this critical time in our family,
but as we have discussed it, we feel it is the best forum for several of our goals.
.
First and foremost, to accurately record the important details of this blurry whirlwind,
as well as the tender mercies that are being extended from both Heaven and earth,
right as they unfold, so that we have a place to look back and see them
when we need to remember them, and also to share them with those we love.
.
We also feel a need to update those who love Bronson, and our family,
with his latest news and progress, in a quick, easy and accessible way.
We've been texting, but it has become slow, sporadic, laborious and overwhelming
to try to get the word out to so many who want/need to be updated.
Try as we might, we were missing people
and it was confusing with so many messages
being forwarded from different sources and at different times.
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Thank you to everyone who tried to help. You did great and we appreciated your help.
But ultimately, with cell phone coverage restricted in the Pediatric Intensive Care Unit
and inner parts and hallway of the hospital,
we found it too lengthy and time consuming and inefficient.
.
We still have our cell phones and answer them when we can,
but will reserve our outgoing messages for individual requests for help, as needed.
.
So here we are... I am blogging again...
.
I can not promise that this will be regularly updated.
Although we do feel it is important,
we are sure you will understand that it is obviously not our current focus.
This...
.
.
This is our focus.
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This blog will not be perfect. It will be messy.
It will not be brief.
(I do not apologize, but brevity is NOT a talent I possess... instead, I am thorough.)
It may be painful.
It may be graphic. It may be awful.
But it will be honest... it will be from my heart.
It will be the truth.
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So from this point on,
Here is where you will find the updated progress reports, straight from us.
As they happen, and as we can post them.
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So this is what I can tell all of you...
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We had a terrible and tragic accident at our home on Saturday morning.
It was a typical Saturday... We had just had breakfast as a family.
Matt had gone on an unplanned mountain bike ride, alone,
but was waiting for a buddy to call and possibly join him.
Kaden was playing video games on the Wii in our family room.
Trevan, was watching cartoons.
As usual, the babies were a mess... covered in breakfast.
I'd just come home from the gym. I needed a shower.
I usually take them in with me. It is easier, faster and less of a mess to shower them.
(I think they had their first actual bath together just a couple weeks ago.
They loved it! I actually video-taped them because it was such a novelty!
They splashed and laughed and played for hours!
I thought I needed to take the time to let them do that more often...)
I started to get undressed to get in the shower, right next to the tub.
I took pajamas and diapers off my little boys and ushered them into the shower.
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As we passed it, Daynen begged to get in the "Hot Tub" (our big, jetted Master Bathtub).
For once, we weren't in a hurry to go anywhere.
I started their water.
I put them in the tub with their fish toys and their boats.
I set out their towels. I played with them a few minutes while the tub filled.
I ran their water a few inches deep. I turned off the faucet.
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I poked my head around the corner into our bedroom to check on Trevan.
(He'd been sick on Friday and had thrown up 23 times. I think he lost 5 pounds.)
He was lying on top of the covers because Matt had made the bed.
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He looked skinny and cold and was shivering in his underwear.
I asked him if he wanted a blanket, he said no.
I told him he looked cold and suggested he go get his pajamas on.
He said he was too tired to go get them.
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And... so I left...
Which turned out to be the biggest mistake of my life.
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Please do not try to sugar-coat things for me.
I am responsible. I am the Mommy.
I should have been more attentive.
I should never have walked away from that tub.
I hope to forgive myself one day... Right now that feels impossible.
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But I walked down the hallway to Trevan and Daynen's room to get Trevan his pajamas.
I should have come straight back...
But I noticed Daynen's bed was still unmade.
And I saw the Laundry basket full of clean clothes
that Matt had carefully set on the end of the bed that morning,
ready to be put away when Trevan did his chores.
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So I thought I'd be nice and do it for him.
I took the shirts Matt had hooked over the side and hung them on the rod in Trevan's closet.
I took the folded stack of jeans and placed them on the shelf.
I straightened the row of shoes on the floor.
While I was in the closet, I got out a diaper and onesie
so I could get Daynen dressed when I got him out of the tub.
I closed the closet door...
Basket in hand, I stepped over to the dresser to put away the socks and underwear.
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I heard a muffled shout from Trevan.
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I set the basket down, alarmed.
Then Trevan came running,
"Mom! Mom! Bronson drowned in the tub! I think he's dead!"
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I ran.
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It was very far to the bathtub.
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He was floating on his back. White. Lips blue. Eyes rolled back. Gone.
Daynen had his arms under his shoulders and thighs, trying to lift him.
Our eyes met.
He looked tiny and helpless trying to keep his brother afloat.
Trying to heave him out.
"Mommy! I so saw-wee! I twy to get him out!"
There was too much water.
It was up past the jets. Running at full speed.
One of them had turned it back on.
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I lunged.
I pulled him out. Wet. Cold. Dripping.
I laid him on the floor on our bathmat, next to the shower we should have taken instead.
He had no pulse.
He would not respond.
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I screamed for Kaden to call 911.
He was already there. Phone in hand. Dialing.
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I began CPR.
I should have gone to Relief Society.
We just had a CPR course... I stayed home that night.
I forgot to pinch his nose.
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I blew air into my baby's lungs. They filled and rose.
He sputtered. Water leaked from his eyes, nose and the sides of his mouth.
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I blew again, pleading with him.
He had no pulse.
I pressed down on his chest with both hands shaking, counting.
Praying.
I blew into his mouth and nose again. Air filled him. He sputtered.
I blew again, hard. He began to vomit.
It was everywhere, on both of us. I turned his head to to the side. I cleared his airway.
Again, I blew. Again, I pressed.
Again, his breakfast ran onto the carpet at the side of his head.
.
Any second... Any second.
Any second his eyes would flutter and he would take a breath.
Any second he would would sit up.
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Any second I would wrap my arms around him and thank God for the close call.
Any second he would be back with us.
Any second... but he did not wake up.
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The Emergency Dispatcher said they were almost there.
I shouted for Kaden to go unlock the front door and wait. To show them where to find us.
He was so brave. So responsible.
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He waited with the door wide open, watching in the cold
the long, loooong minutes until they arrived.
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The Police Officer pulled my shoulder up and back from where I hovered over him, blowing.

I begged him to save my baby.
.
The Fireman grabbed under the armpits and lifted him from the floor mat
running out the door with my heart in hands.
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I scooped Daynen up into my arms, cold, wet and dripping
from where he'd stood shivering and watching me try to bring his best friend back to him.
I told him it was not his fault.
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I ran back down the hall to get him dressed.
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The Police Officer followed.
So many questions...
How long had I been gone? How long had he been under?
How deep was the water when I came in?
Was it hot or cold?
Had he slipped? Had he been pushed?
Did he hit his head?
I didn't know... I still don't know...
I will never know.
We will never know.
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I told my boys to be fast. To get ready to go to the hospital. To get in the car.
I got Daynen diapered and dressed.
This was not happening.
Where was Matt?
Please call Matt. Someone call Matt.
But Matt won't answer. His ipod will be in. He won't hear his phone.
He was going for a long training ride. He could be hours.
He'd just left.
I would do this alone.
Could I do this alone?
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Downstairs, the Officer told me I could not drive.
Told me my children should stay home. Told me to call a neighbor.
SO many choices, which one to choose...
Angi appeared out of nowhere.
She was in my kitchen, an angel in a t-shirt,
"What can I do?"
"Stay here with my babies."
She hugged me, I knew she'd been prompted to come.
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But where was Trevan?
He was missing. Why would he run off? Where would he have gone?
Was he okay? He must be terrified...
I remembered I told him we needed to get to the hospital as fast as possible.
I felt that I should look in the car.
I opened the door to the garage and could see his silhouette,
swaying slightly in his middle seat of the car.
There he was, sick as can be, dressed with his shoes tied, all by himself...
buckled into his seat in the car.
Ready to go. So obedient. So resourceful. Bless his heart.
Another beloved, respected neighbor stood in my entry.
"Oh Steve," I said as he pulled me to him in a supportive embrace.
"I know... I know..." he said.
And as I looked into his eyes, he did.
No judgement.
Bless him for understanding.
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Someone handed me my purse.
I walked out the door with the Officer.
The strikingly beautiful wife of our bishop, Annette, stood eagerly on the sidewalk.
I told her Bronson had drowned.
There were few words, but her compassionate eyes
told me she would help to see that everything was taken care of.
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I glanced up.
Concerned neighbors were everywhere.
The guilt of what I had done washed over me like a wave.
I had left Bronson alone. He was gone. He may never come home.
My poor boys. I had abandoned their brother.
I had created this mess for them to deal with.
I had taken Bronson away from everyone who loves him.
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The Officer escorted me to his car.
The front seat was cluttered with and boxes and papers.
He opened the door and put me in the back where the criminals sit.
Fitting, I thought. I did this.
Not on purpose, of course, but out of negligence.
I bowed my head in shame, not meeting the eyes of the sweet neighbors we drove past.
I wept the empty cry of the helpless.
I prayed to God to spare my son.
I prayed he would be okay.
I promised I would never let myself become distracted by something so unimportant.
Something that can wait.
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We hit every light red on the mile and a half drive down the hill to the hospital.
We drove with no siren at traffic speed.
I wanted to get out and run but my door would not open from te inside.
We pulled into the Ambulance loop at Utah Valley Regional Medical Center.
I could not get out of the car! I was trapped!
I felt claustrophobic.
I waited the eternity that it took for the Officer to walk around to my side and unlock the door.
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I ran, purse dangling over my shoulder, through the doors of the Emergency Room.
More questions...
Where was my baby? Was he alive? Why could I not see him?
I was ushered into a small empty room and asked to wait for these answers.
Alone, I panicked.
I knelt to pray. It was all I could think to do.
I offered my heart and soul to my Father in exchange for a miracle.
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The door opened. It was Angi. She came so that I would not be alone.
We embraced the familiar hug of two women who have been through too much together.
I thanked her for being thoughtful, beyond words.
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The door opened again and my sweet, beautiful Matt came bursting through,
Sobbing.
Wrapping me in his strong arms of comfort.
How had he known?
I thought Kaden had been unable to reach him.
He had been on his way up the canyon, but was waiting for a neighbor buddy to call,
so he'd left his ear phones out and was watching his phone.
I was amazed by this small, tiny miracle.
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He answered Kaden's call just as he was passing Timpview High School.
His world came crashing down.
He will always dread passing that spot on the road where he got that call.
He pedaled his bike across snow-crusted fields and down busy roads to get to the hospital,
unsure what he'd find when he arrived.
.
"I'm so sorry! I'm so, so sorry."
Over and over I apologized.
I don't remember what I said or he said in that frantic moment.
But I do remember the sweet feeling of relief
as I received forgiveness he would not even admit he was extending.
"How could I be mad? Why would I ever be angry?",
spoken in love and genuine sincerity.
They were the sweetest words I would never even have dared to hope to hear.
Lifting a perceptible weight.
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We knelt and prayed. Matt poured out his heart on behalf of our son.
A Nurse came in and ushered us to the room where they were working on Bronson.
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Our sweet, tiny boy.
.
.
He looked so small amid a dozen doctors and nurses hustling about him
amid too many tubes and too many wires.
.
.
There are still too many tubes and too many wires.
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Our Bishop arrived fast.
He and Matt places their hands upon his little head and offered a Priesthood Blessing.
We all wept.
Matt commanded Bronson to be made whole
and called down the powers of heaven to preserve his life.
He asked Father in Heaven to allow him to fulfill the blessings he had been promised
when he was named and blessed as an infant.
Peace and gratitude for this amazing man washed over me
as I heard his voice speaking confidently
and with faith I myself had not yet received.
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We thanked the efficient paramedics
as they described how they had broken protocol
and ran right over the hoses they should have re-reeled back into the truck
in order to shave a few extra seconds off their response time.
They were fast.
We hoped it would be fast enough.
.
A neighbor friend, Chad, an ER Doc,
stopped by to offer words of comfort and give information we had not received.
We felt confident he was in the best hands.
.
Matt's dear friend Mark walked in.
Arms full of clothes for Matt to change into.
Real shoes to wear, instead of his clipped-bottom biking shoes.
So thoughtful...
.
We helped to push the gurney out the double doors
and across the parking lot to where the helicopter awaited.
We begged Rose, the Life Flight attendant, to take extra special care.
We stood, arm in arm, and watched as they flew away with with our life hanging in the balance.
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Matt's parents, Peggy and Larry, arrived, devastated.
They pulled their car around, ready to chauffer us to Salt Lake City.
.
A stranger approached in an aloha print shirt.
A detective.
He just needed a few minutes of our time.
Now?
Yes, now.
Where were our other children?
Home with a neighbor, I said.
Could the neighbor bring them down to the station?
No. They need to be at home. They've all had a traumatic day.
But he needed to have them interviewed right away.
"We are on our way to the hospital," I explained.
He was insistent.
It was critical that he be able to speak with Daynen and Trevan
in order to determine if there had been any criminal activity.
They are 2 and 6, I said.
It must be right away before anyone else can interfere with their testimony
by planting responses or swaying them with suggestions.
I fumed silently.
I shivered with cold... or anger. I'm not sure.
I was cold. And wet. In shock.
Was he actually taking my time with this right NOW?
The audacity was disgusting.
I bit my tongue and politely told him I'd be happy to comply at a later date.
Monday?, he suggested, as if that was actually a realistic consideration.
I told him I hoped I was not at a funeral on Monday.
I gave him my cell phone number.
Mark tucked us into the car with Matt's parents and closed the door,
clenching his jaw to keep from punching the detective in the face.
I smiled at our good and loyal friend.
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Larry followed the GPS printout and navigated to Primary Children's Hospital.
(Which is entirely too far from a major access road, if you ask me.)
We wandered through endless halls trying to follow the path of red signs to lead us,
but could barely find them through our tears.
He'd been stabilized by the time we arrived.
His heart was beating on it's own but he was still not breathing without assistance.
He was already on his ventilator and seemed almost peaceful.
.
.
The doctors and nurses have filled in the holes and explained things as well as they can.
Here is what we know...
Bronson arrived at the ER in full cardiac arrest.
He was intubated en route, but the tube was ineffective
because it had been misplaced in his esophogus instead of his trachia.
All resuscitation efforts had failed to that point,
but he was revived when his heart began to beat again spontaneously in the ER at UVRMC.
He is being treated for anoxic brain injury,
although it continues to remain unclear how severe that might be.
His official down time is impossible to calculate
because we will never know how long he spent underwater before being found and pulled out.
Kaden placed the 911 call at 11:20 am.
The EMT's arrived at our home at 11:24.
Bronson was en route by 11:29 and arrived DOA at 11:31.
Eleven long minutes... plus ?

Currently, he is very sick and the outcome is still unclear.
He is considered in critical, but now stable, condition.
It is still too soon to know whether he will survive,
and if so how much damage there may have been to his brain.
.
All the early tests have shown surprisingly positive indications,
although it will be several days more, at least, before we really have many answers
or know what we will will be dealing with.
His initial CT scan showed minimal swelling of the brain
and definitive differentiation between white and gray matter.
We feel fortunate that because of his young age, his fontanelle (soft spot) is still open,
which gives his brain a little bit more room to expand without damage, as he heals.
.
We chose to have Bronson receive a cutting edge, but experimental treatment
called Post-Arrest Hypothermic Therapy.
The theory is that by inducing hypothermia and reducing his body temperture,
we reduce his swelling (and therefore any further secondary injury that could be caused by it).
More importantly, it also reduces his metabolic rate and metabolism,
(thereby minimizing the energy stores needed to run all of his vital bodily systems).
So that frees up his body's reserves to help heal the most injured parts, his brain and lungs.
The down side to this is that it requires a paralytic medication
to prevent his body's natural shivering reflex.
So he is medically paralyzed for at least 48 hours.
He is also kept heavily sedated to prevent usage of unnecessary energy.
So the wait time before regular neurological assessments can begin is therefore extended.
I'll be honest... It has been an agonizing couple of days just waiting and not knowing.
Still, we were well advised and felt very good that we should do anything we can
to maximize his healing time and allow his body to rest, heal and resethis circuitry, in a sense.
And if there is any chance at all of improving his prognosis,
we felt we had to give it our best shot and that it would be worth a relatively small wait.
Doctors were clear that they did not want to instill false hope
and that the outcome looked fairly grim.
Saturday was pure, unmistakable misery for all of us.
.
We made it through the first torturous night.
No one slept well.
Matt tossed and turned restlessly, waking up each time only to realize he was still here.
I had horrific nightmares. You don't want to imagine.
His early morning chest X-ray came back to show fluid in his right lung.
(A common issue with post-arrest victims who have aspirated during CPR.)
They began an antibiotic to keep the pneumonia from worsening.
Antibiotics are miraculous.
They also temporarily suspended the paralytic medication in order to do an initial
neurological assessment of brain activity and determine a starting point for his progress.
We were all surprised to see that his pupils were reactive to light,
as opposed to the consistent fixed and dialated position the day prior.
And then a tiny little miracle...
WE SAW EYE FLUTTERS!
We were almost too nervous to hope they were real!
But before long he came out of sedation enough to look around and blink,
no doubt trying to make sense of where he was and what he was seeing.
Pure joy. I now know what it feels like.
We were also super encouraged to see him move each of his four major extremities.
Each arm and each leg had what appeared to be purposeful, cognitive movement.
He even passed gas several times!
Who would have thought we'd be so proud and excited for that!
.
The rest of the day was much of the same.
Many visitors, much love, overwhelming support.
We did have to make the decision to focus just on Bronson
and ultimately gave up trying to make text updates to everyone.
We hope you understand...
Thanks to Cheryl, Mindy, Lori and whomever else has been helping to spread our news,
keep all of our family, friends, neighbors and loved ones informed
and most importantly petition for your prayers and support.
Monday morning's chest X-ray showed a more concentrated area of fluid.
This evening, they began to suspect that a portion of his right lung has actually collapsed.
They have adjusted the method and pattern of ventilation
in order to maximize oxygenation and prevent further lung damage.
Tomorrow night's possible extubation looks unlikely.
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He also had a little hiccup with the Arterial IV in his left arm...
It infiltrated and collapsed, leaking caustic medication into his arm, rather than his vein.
He is pretty puffy and bruised and has some slight petechiae,
but they caught it early and it should heal in a day or two with no permanent tissue damage.
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He was holding his favorite blankie, a gift from his Auntie Jane.
.
.
But the MOST exciting part of today was during the afternoon's neuro-assessment...
Initially, it was actually fairly disappointing, as compared to yesterday's good news.
He was much less responsive and seemed more sluggish coming to.
His pupils are still reactive, but are unevenly dialated, (we are told
probably due to the fact that he is still at the peak point for cranial and cerebrial swelling).
HOWEVER, we noticed that rather than just randomly gazing around the room,
he seemed to actually make brief eye contact!
At one point he connected his gaze with Matt's and held for a few seconds.
He also seemed to follow or track toward familiar voices!
Matt and I tried standing on opposite sides of his bed and taking turns speaking to him.
He definitely attempted to turn toward each of us in turn! Especially his Mama!
We are convinced that this is an indication of cognitive processing and recognition!
We are praying we are right!
We are feeling so encouraged that he is fighting so hard! He is such a strong little stinker!
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The doctors and nurses seemed very surprised and encouraged!
He also completed his 48 hour cooling period and began the warm-up phase.
They will slowly return him back to regular body temperature over the next 16 hours.
He should be done around noon or 1:00 tomorrow afternoon.
Then they will attempt to take him off of the paralytic, lighten his sedative
and see how he does. We will just have to wait and see.
Tomorrow could be a very pivotal day!
Our other boys are home with Alli and seem to be doing well.
They made their second trip up to see us tonight and stayed for a couple of hours.
They are each dealing with their part in the crisis so differently but seem to be coping.
They miss us. They are praying for their brother.
Matt and I are still in a bit of a haze, but are trying to process all that is happening.
It hardly seems real!
We plan to continue to stay up at PCMC for the next forseeable little while.
I do not want to leave him.
We take turns sleeping and staying by his side in his room.
We are doing our best to take care of ourselves and appreciate your support.
We are trying not to think about the what ifs and what thens, but are taking things hour by hour.
We are still praying for a miracle.
Already so many tender mercies have been extended.
So many friends and family have texted, sent messages and gifts, called and been to visit!
It is overwhelming... truly...
Meals are coming in by the truckload!
Our wonderful next-door-neighbor, Jacque, already has us coordinated through next week!
And they are even coming from hundreds of miles away!
Our dear friend, Jane, arranged them while poolside from her vacation in Maui!
Unbelievable...
We appreciate all of you for your amazing efforts
and your kind, understanding words of encouragement, support and hope.
Most of all, we are grateful for your faith and prayers.
We feel them! They are real!
We are humbled by your many outpourings of love!
We thank the Lord for the eternal nature of families and our testimonies of the gospel.
We have all received beautiful priesthood blessings with powerful promises.
We ask for your continued faith and prayers on our behalf.
Please pray that Bronson's life will be preserved and that his mind will be protected...
That we will be able to feel peace and clarity
when making whatever difficult decisions must be made...
And that we will have the strength and perspective to follow the spirit as it guides us
and that as we discover Heavenly Father's will, we will have the courage to follow it.
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For now, please hug your babies a little tighter...
Give your children a little extra squeeze...
.
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Be a little more patient and diligent
and a little less distracted by the things that will wait until later.
Embrace the things that matter most!
.
Life is so fragile...
.
.
We are holding onto it for now.

Monday, October 6, 2008

A few more pics of our handsome little guy...
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He's been a great little sleeper so far...
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and loves to be all-cozied up and snuggled...
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He was wide-awake for much of this afternoon,
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so I got some great shots with those bright blue eyes!
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He makes so many cute little faces that we already just adore...
..
We call this the "Pop-eye"...
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(appropriately named because he "pops" one eye open to check things out
and see if there's anything going on worth waking up for!)
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Such cute little yawns...
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And of course, The "Stinky Face"...
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(We'll let you guess why!)
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And who can get enough of those sweet little feet?
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...We love him from head to toe!
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And here are a handful of my fave Images from his Birth-Day, yesterday...
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I will always remember that Bronson was born on a Sunday...
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Matt and I were joking that I didn't even "Labor" enough to break the Sabbath!
.

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I felt so great I could have walked right out of my Room and taken him straight home!
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Here he is with Mommy & Daddy...
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You can see where he gets his good-looks... Woot-woo!

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(What a Hot Dad!)
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Big Brother Trev was the first to get to hold him...
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He was all smiles!
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Then Kade got his turn...
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and couldn't wait for his photo...

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He and Alli counted all his fingers and toes to assure us they were all there...

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Baby Brons loved Alli right from the start...

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He wouldn't take his eyes off her!
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Dayne, on the other hand, was maybe a little too excited,
and thinks of his baby brother as more of a "pet" than a "buddy"!
.
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We had such a fun afternoon with our little family...
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and everyone was WORN OUT
.
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by the time it was over!